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The congress' contributors

The congress' Contributors

Sheila Khawaja

Sheila Khawaja is a rare disease patient advocate since 2013 when she began her experience as the president of a grassroots pituitary organization in north-eastern Italy (ANIPI-FVG), joining the national board (ANIPI-Italia) shortly thereafter. In 2016, she joined the international board of the World Alliance of Pituitary Organizations (WAPO), a global umbrella organization currently bringing together 40 national pituitary patient organizations around the globe.

After the first year as a board member, she was invited to become the organization’s Vice-chair, a role she covered until May 2021, when she was nominated. Since 2016, Sheila has been a panelist, chaired sessions at international European pharma-industry-related events, as well as co-chairing workshops, and co-leading the PFMD Patient Engagement Open Forum (PEOF) online session on the publication of lay summaries. In 2020 Sheila joined the PFMD Strategic Advisory Board; the DIA Global PEC Committee and has recently joined the Patient Engagement and Patient Engagement Data Project at PFMD (PE & PED).

In 2020 she joined the Patient Advisory Board at Sage Publishing - Journal on Therapeutic Advances in Drug Safety to support and advise the journal's editorial board on lay summaries and related topics and in early 2021 she was also invited to join the Focus Science Group PLS Advisory Panel.

Her most recent collaborations: blogging for the European MS Platform event in early June 2021; Reviewing and discussing the Data Saves Lives (EPF) toolkit prior to the official launch, and promoting the value and importance of PE with Italian local health authorities. Professionally, Sheila is an Italian-to-English translator and a Business English Language Coach (BELC) based in beautiful Italy.

Master of Ceremonies


Learn more about Ana Toledo-Chávarri

Ana Toledo-Chávarri

Coordinator of the Patient Involvement Strategy, Spanish Network of Agencies for Assessing National Health System Technologies and Performance- RedETS

Ana Toledo-Chávarri

Advisory Board Members

Programme Committee Members

Patients included

We are proud to announce that EPF Congress 2021 is Patients Included™. This means that EPF is committed to incorporating the experience of patients as experts in living with their condition while ensuring they were neither excluded nor exploited.

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