Ivett Jakab
President, EPF Youth Group
The congress' contributors
The congress'
Contributors
Sheila Khawaja is a rare disease patient advocate since 2013 when she began her experience as the president of a grassroots pituitary organization in north-eastern Italy (ANIPI-FVG), joining the national board (ANIPI-Italia) shortly thereafter. In 2016, she joined the international board of the World Alliance of Pituitary Organizations (WAPO), a global umbrella organization currently bringing together 40 national pituitary patient organizations around the globe.
After the first year as a board member, she was invited to become the organization’s Vice-chair, a role she covered until May 2021, when she was nominated. Since 2016, Sheila has been a panelist, chaired sessions at international European pharma-industry-related events, as well as co-chairing workshops, and co-leading the PFMD Patient Engagement Open Forum (PEOF) online session on the publication of lay summaries. In 2020 Sheila joined the PFMD Strategic Advisory Board; the DIA Global PEC Committee and has recently joined the Patient Engagement and Patient Engagement Data Project at PFMD (PE & PED).
In 2020 she joined the Patient Advisory Board at Sage Publishing - Journal on Therapeutic Advances in Drug Safety to support and advise the journal's editorial board on lay summaries and related topics and in early 2021 she was also invited to join the Focus Science Group PLS Advisory Panel.
Her most recent collaborations: blogging for the European MS Platform event in early June 2021; Reviewing and discussing the Data Saves Lives (EPF) toolkit prior to the official launch, and promoting the value and importance of PE with Italian local health authorities. Professionally, Sheila is an Italian-to-English translator and a Business English Language Coach (BELC) based in beautiful Italy.
President, EPF Youth Group
Podcaster, Faces of Digital Health & MedsClub Community Developer, Better
Orthopaedic Surgeon, Department of Orthopaedic Surgery, Anna Ziekenhuis, Geldrop/Eindhoven, the Netherlands
Board Member, International Federation for Spina Bifida and Hydrocephalus
Youth Strategy & Capacity Building Assistant, EPF
Scientific Director, European Infrastructure for Translational Medicine (EATRIS)
Head of Data Analytics and Methods Taskforce, European Medicines Agency (EMA)
Board Member, World Duchenne Organization
Digital Health Consultant, Manufaktur für Antworten
CEO, EIT Health
Special Advisor, EPF
Past Chair, HTAi Patient and Citizen Involvement Interest Group
Director General, Industrial Policies, MedTech Europe
Director-General, DIGITALEUROPE
CEO, Masaryk University Faculty of Medicine (Brno, Czech Republic) Center for Healthcare Quality
Project Officer, Alzheimer Europe
Global Head of Digital and Data, Healthcare Business of Merck
Freelance Health Policy Analyst and Researcher
Patient Editor, BMJ
Executive Director, Ketotic Hypoglycemia International
Deputy Head of Unit, DG SANTE, European Commission
Head of Unit, SANTE.B3, Digital Health and European Reference Networks
President, EPF
Professor of Integrated Care & Technology, I.M. Sechenov First Moscow State Medical University
Professor in health informatics, Uppsala MedTech Science & Innovation Centre
Regional Adviser, Digital Health Flagship, WHO Regional Office
Senior Policy Officer, International Association of Mutual Benefit Societies (AIM)
Strategic digital transformation of health and care entrepreneur, Leiden University Medical Center
Director of Policy, EPF
President, The European Institute for Innovation through Health Data (i~HD)
Managing Director, European Multiple Sclerosis Platform (EMSP) Acting Executive Director, EPF
Chair, World Alliance of Pituitary Organizations (WAPO)
Regional Director, WHO Europe
Patient Advocate
Vice President of European Affairs, European Pharmaceutical Students’ Association
Founder, OpenAPS
Senior Director Digital Health & Taxation Advocacy EMEA, Johnson & Johnson
Vice President, European Junior Doctors Association
Technology and Innovation Lead, Trinity's Centre for Ageing & Intellectual Disability
Senior Programme Officer, EPF
CEO, 23 Consulting
Co-Founder and CEO, Biel Glasses
Vice Chair, WHO ITU focus group on AI
Young People's Representative, European Multiple Sclerosis Platform (EMSP)
Deputy Director General, DG Research and Innovation, European Commission
Chair, The Digital Health Society
Senior Editor, The BMJ
Head of Division 511 – New technologies and data use, German Federal Ministry of Health
Communications Strategist, Cancer Research UK
Secretary General, Standing Committee of European Doctors (CPME)
President, International Health Literacy Foundation
Head of Programmes, EPF
Associate Dean, SDA Bocconi School of Management
Coordinator of the Patient Involvement Strategy, Spanish Network of Agencies for Assessing National Health System Technologies and Performance- RedETS
Founder, The Hyve
Global Medical Chapter Lead, Real World Evidence, Roche
President, World Duchenne Parent Project Netherlands
Managing Director, Health Connect Partners
Digi-ID Citizen Advisory Panelist
Head of Data Analytics and Methods Taskforce, European Medicines Agency (EMA)
CEO, EIT Health
President, EPF
Director of Policy, EPF
Strategic Lead - Healthcare Quality and Outcomes, OECD
International Projects Coordinator, SPMS Portugal
Director of Public Policy Europe, MSD
Board Member, North Estonia Medical Centre
Digital Transformation Policy Director, DIGITALEUROPE
Executive Committee member, European Alliance of Neuromuscular Disorders Associations (EAMDA)
President, International Health Literacy Association
Senior Adviser on Digital Transformation and Cybersecurity, European Policy Centre
Head of Governance, Membership and Capacity Building, EPF
Policy Advisor, EPF
Vice-Chair, Lupus Europe
Director, BIP consulting
Executive Director, Patient Innovation
President, EPF Youth Group
President, GAMIAN Europe
Founder, Estonian Inflammatory Bowel Disease Society
Acting Executive Director, EPF
Associate Pro-Vice-Chancellor and Professor of Digital Health, Queen's University Belfast
Senior Editor, The BMJ
Head of Programmes, EPF
Head of eHealth Research & Policy, empirica Communication & Technology Research
Board Member, EPF
We are proud to announce that EPF Congress 2021 is Patients Included™. This means that EPF is committed to incorporating the experience of patients as experts in living with their condition while ensuring they were neither excluded nor exploited.
More informationThe website you’re trying to visit is from the 2021 edition of the EPF Congress. To get informations for this year’s event please follow the right link below.